Studies, Research & Papers

Research Opportunities

Throughout the  year, there are many opportunities to participate in Autism Spectrum Disorder (ASD) research studies. Let’s work together to further understand ASD.

Keep checking back for updated opportunities.


IWK Health Centre & McGill University – Current Research Studies, August 2019

Strongest Families Neurodevelopmental – Parents Empowering Neurodiverse Kids

Research Study Purpose

To test the effectiveness of an online parenting program designed to help manage disruptive
behaviour in children with neurodevelopmental disabilities.

Study Basics

  • Seeking 450 families from across Canada to take part
  • Study is 10 months long
    Parents answer online questionnaires three times (study start, 5 & 10 months)
  • Parents receive $50 honorarium for each set of questionnaires completed

 

To participate, parents/caregivers must:

Have a child between 3-14 years diagnosed with a neurodevelopmental disorder (for example, Autism Spectrum Disorder, Cerebral Palsy, Epilepsy, Global Developmental Delay, Down Syndrome, Fetal Alcohol Spectrum Disorder
(FASD), severe learning disability or any other diagnosis that influences how their child gets around, communicates their ideas, processes what they hear, or remembers things PLEASE NOTE: Attention Deficit Hyperactivity Disorder
(ADHD) is included but CANNOT be the only diagnosis (i.e. the child must also have another neurodevelopmental diagnosis to be eligible)
AND the child has been experiencing behavioural problems (disruptive behaviours) that interfere with the activities of daily living for at least 6 months

Stay up-to-date on the progress of this study! Sign up for the newsletter.

DOWNLOAD MORE INFO

 

To learn more about this study or to apply, visit www.crfh.ca/neuro 

You can also contact sf.neuro.study@iwk.nshealth.ca
1.877.341.8309 (menu item 4, then 2)


McMaster University – Current Research Studies, July 2019

Reliability Testing of the ACSF:SC-Integrated (Autism Classification System of Functioning: Social Communication)

Research Study Purpose:

The ACSF:SC Tool and User Guide is a user-friendly way to classify the social communication abilities of children/youth with autism. By ‘Social Communication’ we mean the ability to communicate, with or without words, with various people about their wants. We know this tool works well for preschoolers because that is the group we worked with when we developed and tested this tool.  Now we have an adapted version to be inclusive of all ages

  • Given that children are now being diagnosed at a much younger age, we would like test this tool for toddlers
  • Given the concern of parents that services for their older children not be ignored, we would like to test this tool for school-aged children/youth
  • We need to test this version for reliability with all three age groups!

 

Participants are eligible if they:

  • Are parents/guardians with a child/youth who is at-risk, or already diagnosed with autism
  • Are professionals (clinicians, therapist, educators) who work with children/youth with autism

Participants will receive a $20 gift card as a thank you for your time and feedback

To find out more about this study contact the study coordinator, Helena Viveiros:

SocCom@mcmaster.ca  or 905-525-9140 ext. 27849

Thank you for your interest in our Social Communication study!


 

Dalhousie University – Current Research Studies, May 2019

Transition of Adolescents with ASD to Adulthood

This project aims to identify the barriers and facilitators during transition of youth with ASD to adulthood from the perspectives of individuals with ASD, their parents, and health care providers. In doing so, we strive to gain a better understanding of ways to improve transitional periods to support this population.

We are looking to recruit youth with high functioning ASD, parents of individuals with ASD, and healthcare providers in the field of ASD. 

Participation
Participation in this project will entail attending an interview in which you will be asked to share your insights on the available services or resources during transition of youth with high functioning ASD to adulthood. Interviews can take place in person, over skype or the phone based on your personal preference. This study will take about 60 minutes to complete at the preferred location or virtually via Skype or over phone. You have the option to withdraw from the study at any point.

By participating in this interview, you will be given a gift card (e.g., Amazon, based on your choice), valued at $30.

Check out the poster!

Consent Forms

Click to download!

 

If you are interested in participating in this study or have any questions, please contact the research team via email at resasd2@dal.ca